Comments on: Pineal Gland Tumor

By: Sliloh's Rambles » Post Topic » What is a Pineal Gland Tumor?

Sliloh's Rambles » Post Topic » What is a Pineal Gland Tumor? — Tue, 25 Oct 2011 18:44:12 +0000

[...] Pineal Gland Tumor [...]

By: girlygirl

girlygirl — Tue, 16 Aug 2011 23:12:20 +0000

I am 38 years old and was diagnosed with a Pineal Brain Tumor on August 1st, 2011. I was in the hospital for 10 days with vertigo and vomiting. The vertigo is gone but I have dizziness and balance issues. They decided it was too risky to remove even tho it is 2.3 cm. I go in next week for the plan of action. I am more afraid of losing my hair, because I am involved in the Entertainment Industry. Please tell me about radiation, natural remedy, or anything else. Really frightened!

By: sliloh

sliloh — Thu, 02 Jun 2011 02:54:20 +0000

Hi Vickie,
If you had hydrocephalus from it that would show in the mri, and that could certainly cause headaches, so I’m assuming that’s not the problem. I know it can be very scary. The only thing I can think to do is get a 2nd opinion. The headaches may be totally unrelated but then having something growing in your head that shouldn’t be seems like it could cause headaches. I hope they figure something out!

By: Vickie

Vickie — Thu, 02 Jun 2011 01:56:37 +0000

Hello my name is Vickie I just found out this april 12 2011, while watching TV with my family; Iwent home 20 minute later my head was hurting so bad,I called the advise nurse. So I went to the doctor the next day with strong headace so bad i was jumping from thetable in front of my doctor,, whole their with doctor. She order of CT Scan it showed a 6mm somthing their the doctors dont know for a second look a MRI was order it showed the (Same 6mm) Somthing the doctor dont know what going on i was tha it is to small to do a bisopy,, May 31 i saw a Neuor sugeryen he want do MRI every 3 month saying that not a emergency to do anything @ the moment . But my head hurts all day every day. I am very very Scare and dont know what to do .I am a Mother of 5 grow Kids Husband of 26years And GRandmother of three Granson.

By: sliloh

sliloh — Thu, 05 May 2011 00:40:35 +0000

I wish you the best of luck Brad! You are in good hands with Dr Friedman, that man is still my hero.

I know it’s such an unexpected turn in life isn’t it? It’s good to know you can come out on the other side of it and have a normal life.

Anita

By: Brad

Brad — Wed, 04 May 2011 19:51:49 +0000

It’s amazing how similar our stories are. I’m a 31 year old male that learned during a routine eye exam at LensCrafters on a family vacation that I had a brain tumor. Needless to say I was in a good bit of shock. I was 31, a husband and father, and had been mostly healthy for the majority of my life. I was diagnosed with a tumor at the end of February. The December prior (2010) I was diagnosed with major depressive disorder. About 6 months prior to that, I started having episodes of depression to which I was going to counseling. For approximately 5 years prior to being diagnosed, I had headaches similar to migraines. I had been told that the headaches were caused by “the wrong type of pillows” or “an old mattress”. What was actually happening was the hydrocephalus was causing a pressure buildup in my head, which was causing the headaches, the depression, my lack of balance, and a reduced ability to walk normally. The tumor itself is located such that it is causing double vision (the reason for my visit to lenscrafters). Eight days after being diagnosed with the tumor, I had a shunt installed at Portsmouth Naval Hospital in Portsmouth, VA. With the shunt installed, my neurosurgeon, my wife and I went about planning how to deal with the tumor. My neurosurgeon did not feel comfortable removing the tumor or taking a biopsy based on the location. Being that my doctor studied at Duke, he recommended us going there to have the biopsy/removal/treatment done.

With all that being said, I will be going down to Duke next week and Dr. Friedman will be removing as much of my tumor as possible. He seems very positive that he will be able to remove most of it.

I just wanted to thank you so much for sharing your story. It provided an ample amount of motivation and courage to me and my family that we can make it through this and that we will come out on the other side shining. Again, thank you so much for sharing. Your story is an inspiration.

Brad

By: jgh

jgh — Sun, 30 Jan 2011 13:59:40 +0000

Dr richard ellenbogen
harbor view hospital
seattle washington usa
university of washington

World renowned

Get fax send dr notes/ mri

Excellent surgeon great bedside manners

By: peter cadisch

peter cadisch — Sat, 09 Oct 2010 12:55:41 +0000

Hi – I live in the UK. Although not suffering from any symptoms, other than the odd slight sight effect when working late, a routine eye test referred me to a consultant opthalmologist who sent me on for a scan. This was in 1986 ! The scan showed up a pineal tumour and I was rushed the same day to a consultant brain surgeon.
He offered immediate brain surgery, but at the last minute changed his mind that this would be extremely risky as the slightest “slip up” could effect one or two of my senses. He talked to a friendly oncologist at St. Thomas’s london hospital who took me on for radical radiotherapy.
34 treatments of radiotherapy – half on the tumour and half all the way down my spine took two and a half months plus – I got very tired, and often felt quite sick, but I managed to stay the course, with MUCH personal dedication.
Some 24 years on and I am still aok, albeit I have a very weak back.
I am so greatfull to be alive and am so thankful to my consultant Mr. Timothy and God.
If anyone wants to contact me then Id be happy to talk things through, as one “whos been there and got the tea shirt”

By: Vanessa

Vanessa — Wed, 04 Aug 2010 09:41:47 +0000

hi there,

I’ve just been told that I have the same sort of tumor and your post helped me understand it a little bit better from another persons point of view who has experienced what I anticipate happening to me.

Thankyou for your links, I’m about to embark on venturing through those!

Cheers,
Vanessa

By: erin

erin — Thu, 29 Jul 2010 08:15:39 +0000

hi all
my name is erin im 23 and have just found out i have a pineal gland tumor, so as you can tell im still in shock
i was worried about my husband and baby but ready this has made me feel better and more at ease.
thank you x